Rare Disease Day – Focus on Advocacy

On February 28, 2017, Rare Disease Day, Nancy Stewart and Gail Wright attended a Rare Disease Event at the Ontario Legislature, where we had the opportunity to meet Members of Provincial Parliament and tell them about PBC. A highlight of the day was witnessing MP Michael Harris announce a Rare Disease motion that would help those with rare diseases get access to much needed care and treatment options #TreatRareDisease. We plan to meet with Provincial legislators across Canada beginning this spring.