This is the last of four PBC Profiles that will appear in the National Post Patient Diaries Series. One of the best ways to raise awareness about PBC is to get our stories told, leading to early diagnosis and treatment.Read full article
On June 2, The Canadian PBC Society was fortunate enough travel to Duncan, BC for our PBC Self Management Workshop. Through this workshop we were able to provide and share information about the disease. We were very happy to see the PBC community in Duncan come out to discuss their thoughts and experiences with us. It was an amazing experience and we would like to thank all of those who participated. A special thanks also goes out to Anne Hartford and Fairlie Mendoza for all their work in facilitating the event. 
On June 1, The Canadian PBC Society hosted a dinner meeting to discuss the latest in PBC news. We were lucky enough to have Dr. Andrew Mason as our guest speaker, who was able to provide attendees with invaluable information about the disease. The event was a tremendous success in the discussion about PBC and its causes, treatments, and advancements. At the meeting we had the opportunity to present Dr. Mason with the 2017 Outstanding PBC Researcher award and a cheque for $5,000. The Canadian PBC Society looks forward to continuing to work with Dr. Mason on a variety of projects to improve the quality of life for people living with PBC and we are closely following his research endeavors as we strive for a cure. 
On May 31st the Canadian PBC Society met with the Government officials in Victoria, BC. In our efforts for us to shine a spotlight on PBC – we told government officials about PBC – the disease itself – and also the challenges of diagnosis and limited treatments available. We were able to have an excellent discussion about what it’s like to live with PBC. Our trip was a great success in the journey to raising awareness and spreading information about this rare disease. 
The Canadian PBC Society attended a meeting with the a Assistant Deputy of Health for New Brunswick in Fredericton on May 10th. It is exciting to be able to spread information and awareness about PBC across Canada. Follow our journey as we travel throughout the country to provide support, medical information, community, and awareness for those suffering from PBC. 
More exciting news in Liver Research. Engineered liver tissue could help millions of people who suffer from chronic liver disease but don’t qualify for a liver transplant. – Read More 
“Liver dialysis” trial begins in the UK/EU with 24 patients at 7 sites – adding 100 EU patients in 2018.The aim is to remove toxins that accumulate in liver failure to prevent inflammation. It has the potential to allow the liver to regenerate – Read More 
Starting in Halifax in May, 2017, the Canadian PBC Society met with government health policy experts, decision-makers, medical professionals, and PBC patients and their families to talk about the ongoing work to find a cure for PBC, the critical need for early diagnosis of PBC patients, treatment options and the implications of disease progression for patients and their families.
“Genkyotex Initiates Patient Enrollment into Phase 2 Trial of GKT831 in Primary Biliary Cholangitis” – Read More 